The Final CMS decision about the cuts to dialysis providers is out and Dialysis Patient Citizens has posted about it. To see what DPC wrote about the decision CLICK HERE.
To join DPC click on their Home Page and then click on Join or CLICK HERE. It’s free and every member is that much more power and influence in Washington. (I am a Patient Ambassador for DPC which means I occasionally to our Nation’s Capital to lobby Congress on behalf of dialysis patients. DPC funds my travel.)
Also, Kidney Care Partners has posted the Press Release from the American Kidney Fund about its concerns that the cuts go too far. CLICK HERE to read it.
Also here’s a link to what I posted previously about the CMS cuts. It’s a bit aout of date now because of these other events but it put things into perspective as this has been going on a while. CLICK HERE to read it.
Finally, the American Kidney Fund has also made their position known with a statement. Click HERE to read it.
I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time.
In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee
I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com
All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment.
I also blog in LegacyTales in WordPress if you are interested in the ramblings of a Old Man. Give a peek and let me know what you think. https://legacytales.wordpress.com/
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Thank you for posting this and letting us know! It is scary enough for us without cuts.