Dialysis and pre-Transplant

Here is a great resource for getting on the Transplant List and preparing for the transplant process.

This from the Renal Support Network and Lori Hartwell, the RSN founder who has been a hardcore supporter and educator of the Kidney community.

If you’re in dialysis and looking into the transplant opportunity or just want to educate yourself about it, give a listen.



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Dialysis and Medications

Hey y’all…

I came across this article from the National Kidney Foundation (NKF) and thought it might be helpful to those wondering about the effect of medications on your kidneys. Some can be harmful to your kidneys.

Caution, however. If your doctor has prescribed a medication that you find in this article, don’t discontinue it without consulting with the doctor. Just make sure you bring it up at the next visit. You can also raise it with your nephrologist if that’s not who prescribed it.

Here’s the article. Let me know what you think. https://www.kidney.org/atoz/content/drugs-your-kidneys

DevonTexas, copyright 2019







Posted in CKD, dialysis, ESRD, kidney, Kidney Diet, Kidney-friendly, Medications, National Kidney Foundation. NKF, New Patient, Transplant, Uncategorized | Tagged , , , , , , | 1 Comment

Getting away: not always easy!

This gallery contains 6 photos.

Originally posted on Big D and Me:
Over the last six months, we have managed to get out of town occasionally, for one or two days around dialysis. By around dialysis, I mean that leave for our mini holiday accommodation…

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Ya’ll gotta see this…

Here are two photos.  One, taken in 2013 when I was in a wheelchair being pushed around the US Capitol, obese, ready to get off the exit on the Highway of Life. The other is 2016, lost 100lbs, able to walk with a cane, again at the Capitol, taking back my life from the terrible place I let it go to.

Can you see a difference?

So, although i haven’t posted in a while, I have been busy.  More later.  Exciting stuff.


Devon in DC 1Devon

Posted in dialysis, disability, ESRD, exercise, kidney, thankful, Transplant, weight loss, weight reduction | Tagged , , , | 4 Comments

Dialysis and Kidney-friendly Snacks

Still an important issue for those who want an ocassional snack without the worry of the chemicals they contain.


bbq nutrition_1f1824e0-6eaf-11e5-9a62-afae4f70ace8

1/15/16 Update – I saw a post on FaceBook that offered a free sample (just pay shipping) from Vida-Fuel.  I would highly recommend you try these snacks! Go to their WebSite to see the offer

Hey everyone!  Sorry for the lack of new material for a while but it’s been a tough year and I just can’t seem to get to my desktop as often.  Sorry for that.  I’ve been working very hard to get this old body in shape, reducing my weight, and earning a few extra bucks with Uber driving.  More about all that later (and I have much to say).  Now it’s about snacking.

If you snack then make it a kidney-friendly snack.  Frankly, I rarely eat any snack foods as they all contain the two dreaded ingredients, Phosphorus and Potassium!  Yuck!  However, here are a couple items that may fill the need and be kidney…

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Community Run Dialysis – Inspirational!

Reblogged. Something to seriously consider even here in the US. We have sonething close. It’s called Dialyspa. Their idea is that the patients come first. Patients over Profits? I wrote anout them in “Dialysis and Dialyspa” in my blog at http://www.DevonTexas.com

Big D and Me

Over the last week, I’ve been working on a new project that involved making a list of all the dialysis units in Australia (more on that soon). In the process, I discovered that all units are either public (free via Medicare) or private (fee charging), except one, which is owned and run by dialysis patients and their families.

Run by patients and families? What the…?

Of course, I had to know more, so I contacted them and discovered firstly that they’ve been around a while and I’m a bit late to this party. But that made finding them even more heartwarming and inspiring.

This community run dialysis service follows a very different model. It is focussed not just on dialysis, but also on the community, on keeping people together. Imagine a place where family and community, culture and country are integral to a happy and fulfilling life. Where people live…

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Dialysis and Phosphorus, Again

I came across this posting from The National Kidney Foundation about controlling phosphorus and I have to share it.  I especially appreciate that they cover ways to read the ingredients label and include a list of items you CAN eat that are lower in phosphorus.

Also, I like that they make the point about natural versus added phosphorus.  Our bodies don’t absorb the as much of phosphorus that is naturally in the food like that in meat or plants. However, phosphorus that is added for whatever reason (usually as a preservative) is 100% absorbed and more quickly than naturally occurring phosphorus.

Phosphorus control is the bane of my existence.  Potassium I can avoid but phosphorus, I can’t seem to overcome. I know other dialysis patients have a problem with it. So take heart and read the article “How To Be A Phosphorus Detective” at the link below. Let me know if you find this helpful.


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#Dialysis and #Hope for #Kidney Patients – update

A few months ago, I posted the first part of this under the title, “Dialysis and Hope for #Kidney Patients” .  There are some promising developments and even more exciting things to come.  Here is an update…

I recently attended a conference hosted by the American Society of Nephrology which gathered nephrologists, researchers, professors, dialysis providers (Davita and Fresenius), hardware manufactures and engineers, and patients together for two solid days of discussion.  The coolest part about this were the breakout sessions during which we brainstormed about taking dialysis out of the box.  We discussed some other approaches that are currently in development such as the implanted artificial kidney, the wearable kidney, kidney regeneration, kidneys grown using stem cells, but we also opened up other methods to perform dialysis without needles.  Yes, all this very theoretical and “pie in the sky” at the moment but it shows some promise. At some point in the future, we won’t have to rely on traditional methods of dialysis.

One point made by a speaker was that twenty years ago we said, “Twenty years from now…” and it is twenty years from now. So, where are we? Unfortunately, nothing tangible is on the market.  The hope is that the next time we say, “Twenty years from now…”, we won’t be looking back on no significant developments in dialysis.

The more immediate future

I figure the track of development will be more progress on the wearable kidney while the research and development in some very promising areas continues,  There are some massive hurdles to leap between now and coming out with these.

The Kidney Project

The Implanted Kidney

The next layer of development is the implanted kidney.  There is some very promising work in this field.  From Nephrology News and Issues: “Implantable artificial kidney project making progress”.  This is a mechanical kidney that reproduces the function of a real kidney and is powered by the blood flow from the heart in a manner similar to the real kidneys. It uses nanotechnology microchips to mimic the filtering performed by the kidneys,  The chips determine the “good” from the “bad” and send the bad cells along with the excess fluid into the urinary system to be removed from the body.  The developer, William H. Fissell IV, MD, says he has, “a long list of dialysis patients eager to join a future human trial.  Pilot studies of the silicon filters could start in patients by the end of 2017.”  For more information about this, see “The Kidney Project”

Kidney Regeneration

Another approach to improve the lives of kidney patients is to revive kidneys damaged by disease, or regeneration.  Fortunately the kidney is an organ that responds well to regeneration. From Harvard University, here’s a posting titled, “The Kidney Repair Shop” (a cute title for some very serious work). In this case, they are using stem cells to cause the tubules which are responsible for filtering in the kidney to regenerate.

stem cells in kidney regeneration

As you can see from the picture above, this is no small task.  The stems cells from a neonatal source (such as the umbilical cord of a recently born child) are combined with cells from the patient’s kidney to cause the kidney to repair itself.  Cool, eh?  However, this method requires a huge amount of research into how the cells interact and complex experimentation to mimic this process in the kidney.

3-D Printing a Kidney

There is some really exciting work being done that prints a kidney using a slush of materials and a 3-D printer to create a functioning kidney that can be implanted into a patient.  From Gizmodo.com:

samples of human kidney cells are cultured in large volumes and blended with hydrogel, a water- and nutrition-rich material that makes up the 3D printed kidneys’ base. Afterwards, the printed cells can survive for up to four months in a lab thanks to this gel’s rich nutrient source.

You can read more about this in the article titled: “Scientists Can Now 3-D Print Transplantable, Living Kidneys”.

So, as you can see, there are very exciting developments going on in the kidney world.  I’m excited anyway.  In the meantime, I will continue my transplant efforts and hope that something miraculous comes along soon.  Perhaps not in my lifetime but in yours.

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#Dialysis and Hope for #Kidney Patients

wearable kidneyUpdate 10/5/16:  Some disappointing news via Kidney Buzz about the “wearable kidney” and it being delayed by a lack of funding.  Read it here at Kidney Buzz. 

From the National Kidney Foundation’s Kidney Advocacy Committee program…

“There is some much going on in the kidney world. Out here in San Fransisco at UCSF Dr. Roy is in phase 2 of the artificial kidney, where no immunosuppressive drugs will be needed and no matching. This will be a game changer and clinical trails may start as soon as 2017/2018. You can follow their work on Facebook on “The Kidney Project” page. I spoke with Dr Roy and this work gives me such hope that we can reduce or remove the transplant wait list. We are not talking science fiction far off in to the future either. “

This is a HUGE step forward for us.

I found this link for the Kidney Project that may be a better description of the work Dr. Roy is doing.  It is fascinating.  Also, here is Dr. Roy’s profile and description of his academic works.

Meanwhile there is ongoing work nationwide on a kidney created using your cells and stem cells to “grow” a kidney for you exclusively.  Again, no anti-rejection drugs would be needed because it is “your” kidney.

SEE the other related post, “Dialysis and Hope for Kidney Patients – Update”


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Dialysis and Cooking

downloadHey all!  I need to share this article about cooking for dialysis patients.  Read it carefully and I hope you find it as interesting as I do.  I’m inspired by the fact the study involved supports all the findings with facts.



From Renal and Urology News, “Cooking Methods May Help Dialysis Patient Control Phosphorus”  Please thank them for publishing this study.  dominic.barone@haymarketmedical.com


2016 DevonTexas

Posted in calcium, cooking. cookbook, diabetes, diet, dietary restictions, Kidney Diet, phosphorus, potassium, recipes, sodium | Tagged , , , , , , | Leave a comment