Monthly Archives: May 2013

Dialysis and Death (Part 3)

Posted on May 30, 2013 by DevonTexas

My friend, Dr Robert Bear, wrote a wonderful article based on his presentations about dialysis patients and “palliative care” (healthcare that focuses on relieving and preventing the suffering of patients).  He courageously goes where few like to go… End of … Continue reading →

Posted in death, dialysis, ESRD, patient care, Patient-Centered Care | Tagged , , , , | 3 Comments

Dialysis and “Medicare Says”

Posted on May 23, 2013 by DevonTexas

I know you will appreciate this recent experience I had with “Medicare says…”   That seemed to be the answer to every question I had or suggestion I offered to the staff at my center.  If you read my post, this  experience … Continue reading →

Posted in computing, customer service, dialysis, dialysis equipment, kidney, Medicare, pad, patient care, Patient-Centered Care, tablet, thoughts | Tagged , , , , , , , | Leave a comment

Dirty medicine

Posted on May 18, 2013 by DevonTexas

This is very important to dialysis patients as the many drugs we must take could be poorly or fraudulently manufatured.

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Dialysis and Dry Eyes

Posted on May 17, 2013 by DevonTexas

Whoopsy!  I didn’t mean to post this draft originally.  That’s why it was just a link..  My bad. But it’s a good article about dry eyes that may pertain to some dialysis patients. I’ve been dealing with very dry eyes … Continue reading →

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Dialysis, ObamaCare, and the IPAB Panel

Posted on May 12, 2013 by DevonTexas

Lately the big news item related to the Affordable Care Act (ACA) or ObamaCare is about the Independent Payment Advisory Board (IPAB).    As usual, there’s a great deal of confusion about the IPAB and some of it intended.   … Continue reading →

Posted in ACA, Affordable Care Act, dialysis, ESRD, Obamacare, patient care, politics, thoughts | Tagged , , , , | 2 Comments

Today

Posted on May 9, 2013 by DevonTexas

I usually post on Thursdays because it’s a “day off” from dialysis but today, I’m just really hazy and lazy.  My mood reflects the weather today.  It overcast and gloomy.  So, I won’t post today (actually I am posting just … Continue reading →

Posted in dialysis, ESRD, lobbying, patient care, Patient-Centered Care, thoughts | Tagged , , , , | 2 Comments

Dialysis and Telling the Kids

Posted on May 8, 2013 by DevonTexas

I recently got a very good question “How do I tell my kids I’m going on dialysis?” It sparked some thoughts.  When I started dialysis it was “all of a sudden”.  I told most people after the fact.  It’s mostly … Continue reading →

Posted in dialysis, ESRD, New Patient, parenting | Tagged , , , , , | 2 Comments

Dialysis and Activism

Posted on May 7, 2013 by DevonTexas

While I was in Washington D.C. meeting with aides of Representatives and Senators, I took a moment to comment on why I became an advocate for kidney and dialysis patients.   They edited it well.  You can barely see my … Continue reading →

Posted in activism, dialysis, lobbying, politics, thoughts, World Kidney Day | Tagged , , , , | 1 Comment

Dialysis and EEOC Mediation (Update)

Posted on May 5, 2013 by DevonTexas

I posted previously on the issue of my EEOC complaint against my former employer and the subsequent Mediation.  It’s all a bit complicated.  I went through this previously with another employer while I had CKD.  At the time, I didn’t … Continue reading →

Posted in ADA, ADEA, CKD, dialysis, discrimination, ESRD, layoff, personal | Tagged , , , , | Leave a comment

Dialysis and ObamaCare (Update)

Posted on May 4, 2013 by DevonTexas

Here’s directly from the Dialysis Patient Citizens (DPC) Newsletter… Clearing up Confusion about the Affordable Care Act More than three years after passage of the Affordable Care Act (ACA), there is still a great deal of confusion surrounding the legislation … Continue reading →

Posted in ACA, Affordable Care Act, dialysis, ESRD, kidney, Medicare, politics | Tagged , , , , | Leave a comment