Monthly Archives: March 2014

Dialysis and NPR

While I was in Washington, DC for the Dialysis Patient Citizen fly-in, National Public Radio’s Ailsa Chang did an interview with me while reporting on “Access to Your Congressman”.  It was a great opportunity to get the word out about … Continue reading

Posted in Access, Affordable Care Act, Dialysis Patient Citizens, kidney, lobbying, Medicare, Uncategorized, World Kidney Day | Tagged , , , , , , | 6 Comments

Dialysis and Nutrition Labels

The National Kidney Foundation is involved with the FDA on some proposed changes to nutrition labels that will benefit kidney patients.  Read about it by CLICKING HERE.   As it stands, there’s a great deal of information on a nutrition label … Continue reading

Posted in dialysis, diet, dietary restictions, fluid control, kidney, National Kidney Foundation. NKF, New Patient | Tagged , , , , , , , , | Leave a comment

Dialysis and Needle Pain

I posted this a couple years back but it’s a popular topic for dialysis patients, new and experienced, so I’ll post it again to refresh it.  It has some sage advice from other patients and how they deal with the … Continue reading

Posted in A/V Fistula, Access, dialysis, kidney, lidocaine, New Patient, ointment, pain, patient care, thoughts, Uncategorized | Tagged , , , , , , , , , , , , | 9 Comments

Dialysis and Amazing

You’re not going to believe this but CMS/Medicare withdrew their proposed changes to Medicare Part D drug coverage for post-transplant patients.  Is that amazing or what?!  I don’t know if it was the actual intervention by the dialysis/transplant community or … Continue reading

Posted in AAKP, activism, CMS, Dialysis Patient Citizens, ESRD, lobbying, Medicare, National Kidney Foundation. NKF, politics, social networking, World Kidney Day | Tagged , , , , , , , , , | 1 Comment

Dialysis First Stick – More

Recently a comment was left in the post about Dialysis and The First Stick where I retell my experience when starting dialysis.  The reader, TuTu, had a very similar experience and was kind enough to share it.  I’d like to repeat it … Continue reading

Posted in activism, dialysis, ESRD, New Patient, ointment, pain, patient care, Patient-Centered Care, Social Work | Tagged , , , , , , | 1 Comment

Dialysis AAKP and World Kidney Day

In celebration of World Kidney Day (13 March 2014) the American Association of Kidney Patients (AAKP) is hosting a webinar about transplantation.    You can read about it and register by CLICKING HERE.   Also, if you’re not already a member, … Continue reading

Posted in AAKP, activism, dialysis, Dialysis Patient Citizens, DPC, ESRD, kidney, lobbying, National Kidney Foundation. NKF | Tagged , , , , | 2 Comments