Category Archives: Uncategorized

Kidney Patient Advocacy Has a New Face — 60 of Them


The National Kidney Foundation (NKF) has launched a new patient advocacy and engagement program to expand its grassroots network at the state level. The Kidney Action Committee is comprised of 60 p… Source: Kidney Patient Advocacy Has a New Face … Continue reading

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Dialysis and Friday


      Hey all!   I really don’t have much to post about today other than Happy Friday! For those on a MWF dialysis schedule, you get two days off! For those on TTS schedule, you only have one … Continue reading

Posted in dialysis, ESRD, friendship, kidney, personal, Uncategorized, World Kidney Day | Tagged , , , , , , | Leave a comment

In Washington DC


For the fourth or fifth year, I’m in DC to lobby Congress on behalf of Dialysis patients as a member and Patient Ambassador with DPC (Dialysis Patient Citizens). You can help by calling or emailing your Representative and Senators and tell … Continue reading

Posted in CKD, dialysis, Dialysis Patient Citizens, DPC, kidney, lobbying, Medicare, politics, Uncategorized, World Kidney Day | Tagged , , , , , , , , | Leave a comment

Dialysis and Kidney-friendly Snacks


1/15/16 Update – I saw a post on FaceBook that offered a free sample (just pay shipping) from Vida-Fuel.  I would highly recommend you try these snacks! Go to their WebSite to see the offer Hey everyone!  Sorry for the … Continue reading

Posted in calcium, CKD, dialysis, diet, dietary restictions, New Patient, phosphorus, potassium, sodium, Uncategorized | Tagged , , , , , , , , , | 2 Comments

Dialysis and Apology


Hey all! Update 11/8/15:  Shew!  I wrote this apology last July!  I’m terribly sorry for the delay.  I have no good excuse.  However, my very dear brother came to my rescue and bought me a nifty laptop so now I … Continue reading

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Dialysis CKD Kidney Disease and Hidden Grapefruit Sources


The KidneyBuzz (www.kidneybuzz.com) website posted a great piece on the issue of hidden sources of Grapefruit.  Grapefruit, as you might or might not know, can be detrimental for dialysis patients. Here’s the article for your reading pleasure.  However, in each case we should … Continue reading

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Dialysis and Bone Disease


From the DPC Education Center comes a conference call on Bone and Mineral Disease. Why is this important or relevant to dialysis patients?  Well, that pesky phosphorus (See Dialysis and Phosphorus Control) leaches calcium from your bones and replaces it with … Continue reading

Posted in Bicarbonate, bones, calcium, dialysis, Dialysis Center, dietary restictions, ESRD, fluid control, New Patient, patient care, Patient Responsibilities, phosphorus, potassium, Uncategorized | Tagged , , , , , , , , , , , , | Leave a comment

Surviving a Stroke at 33 (and Blogging About It)


Originally posted on The WordPress.com Blog:
Christine Hyung-Oak Lee suffered a stroke when she was 33, and she has written about her experience in an inspiring personal essay for BuzzFeed. Before that, she was using a pseudonym on WordPress.com to…

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Dialysis and a New APP


The AAKP came up with this helpful bit of Andriod technology… THE AMERICAN ASSOCIATION OF KIDNEY  PATIENTS LAUNCHES NEW APP TO HELP PATIENTS WITH NUTRITIONAL NEEDS “On July 24, the American Association of Kidney Patients (AAKP) launched the AAKP Nutrition … Continue reading

Posted in AAKP, apps, CKD, computing, dialysis, diet, dietary restictions, ESRD, kidney, pad, phosphorus, potassium, recipes, tablet, Uncategorized | Tagged , , , , , , , , , | 1 Comment

Medicare Beneficiaries with Kidney Failure Have the Highest Out-of-Pocket Spending


Originally posted on Advocacy in Action:
On July 21, 2014 the Kaiser Family Foundation released a report on out-of-pocket expenses paid by Medicare beneficiaries.  Not surprisingly, the report identified that individuals with end-stage renal disease (ESRD) have the highest out…

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