Author Archives: DevonTexas

About DevonTexas

I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I can be hooked up to a machine that will clean my blood as the kidneys should. Three days a week, I go to a center and have too very large needles stuck in my arm to remove and replace my blood as it passes through a process where it's cleaned and the fluid is removed, a process taking a little over four hours each time. I want to advance knowledge about dialysis so that other patients can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them. All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment. Enjoy.

#Dialysis and Social Media


My friend, Jim Myers, was a guest of the National Kidney Foundation and their Advocacy in Action Blog on the topic: “Why We Need to Be Active on Social Media”.   He makes some very good points about the effective use … Continue reading

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Dialysis and Kidney Transplant II


Here’s a YUGE development in organ transplant! NEW LIVING ORGAN DONATION COLLABORATION ANNOUNCED AT WHITE HOUSE ORGAN SUMMIT From the National Kidney Foundation website… “The White House annouced a new collaboration with Johns Hopkins University and Novartis to nationally launch the … Continue reading

Posted in activism, ESRD, kidney, kidney donation, lobbying, National Kidney Foundation. NKF, Transplant | Tagged , , , , , , , | 1 Comment

Dialysis and Kidney Transplant


Okay ya’ll.  I’m going for the transplant. I signed up for the Transplant list with Harris Hospital in Fort Worth, Texas.  So, if you readers with two kidneys happen to be there….  LOL I’ll keep you informed as I venture … Continue reading

Posted in A/V Fistula, Access, dialysis, Dialysis Center, Discharge Planning, ESRD, kidney, Medicare, Modalities, Modality, New Patient, Patient Responsibilities, planning, thankful, thoughts, Transplant | Tagged , , , , , , , , , , | 2 Comments

Dialysis and Cramping updated


Cramping isn’t good!  CRAMPING IS BAD! (update 6/26/16: See the comments for more thoughts about cramping) Aside from the fact that it is excruciatingly painful, it is an indication that something is wrong during dialysis.  Too much fluid is being … Continue reading

Posted in cramping, cramps, dialysis, dry weight, ESRD, fluid control | Tagged , , , , | 10 Comments

American Kidney Fund – Blog: 5 things you should know if you want a kidney transplant


5 things you should know if you want a kidney transplant Source: American Kidney Fund – Blog: 5 things you should know if you want a kidney transplant

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NKF in 2016: Legislative Priorities


Though the National Kidney Foundation (NKF) is pleased with our advances this past year to ensure kidney patient perspectives were considered and included in policy decisions, we are hard at work o… Source: NKF in 2016: Legislative Priorities

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Kidney Patient Advocacy Has a New Face — 60 of Them


The National Kidney Foundation (NKF) has launched a new patient advocacy and engagement program to expand its grassroots network at the state level. The Kidney Action Committee is comprised of 60 p… Source: Kidney Patient Advocacy Has a New Face … Continue reading

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