Dialysis and Rebirth

rebirthI recently made some profound changes in my life.  I didn’t mention anything previously because I didn’t want to jinx it.  But, now that I am a bit down the road, I’m comfortable to write about it.

Confession time.  I’ve not played it close to the chest in this blog.  Good or bad, I have written about it because I want people to know about the dialysis experience.  You should get a lot of information from your treatment center but my experience is that they want to get you hooked up to the machine, go about their business, and get you off the machine.  The only time you interact with a staff member, generally, is when they are busy sticking you or taking you off.  The nurse may come around and check your heart, lungs, access but, again, there’s not a lot of chatting.  So, when you have a question, I expect you don’t get an answer.  That’s why I began this blog.  I’ll talk about anything — diarrhea, depression, conflicts, “the Center from Hell, etc.  I don’t hold anything back.  But this topic cuts to the quick.  It’s painful to write about and here goes.

When I began dialysis back in August 2008, I was about 125 kilos (275 lbs) in dry weight.  I’d go in on a Monday at well over 133.  I was drinking entirely too much fluid and I didn’t know much about a kidney-friendly diet.  In my last year with CKD-4, I gained about 40 lbs because the only activity, aside from going to work behind a desk, was eating.  In the first year or so of dialysis, I gradually got to the point where I was going in a kilo more every other month.  In a year that was 6 kilos.  I was working and maintaining a home with two young men.  I didn’t have time for much more than eating.  So gradually I gained until my dry weight was 143.  That is almost 315 pounds!

The Eureka! moment was when I couldn’t put on my own shoes and could barely get dressed without help.  Then, when I couldn’t wipe my butt thoroughly because I couldn’t reach it, I decided to go into a weight reduction program.  Over the years, I had tried all the “drink this”diets and about all the popular diet methods like the South Beach, Atkins, etc but now that I had full-blown ESRD, I had to be careful with anything like that.  I decided on the bariatric method, specifically LapBand.  Actually, I wanted to do that back in 2007-2008 but my insurance at the time wouldn’t cover it.  I even considered paying for myself.  It was supposed to be $9500 but because of my kidney failure, it would be $15,000 as it had to be done in the hospital instead of the outpatient surgical center.  Even at the higher price, it would have been worth it but then I got laid off.  So, I figured I’d wait until Medicare kicked in as my primary insurance after the first 3 years.  That was 2011.  (It took a few years before I reached my breaking point and got the courage to begin.) Over the summer of 2014, I worked on the pre-op requirements.

On September 22, 2014, I got the LapBand installed.  It has been about 7 months and I am at 119.2 kilos (262).  That’s over 52 pounds later!  I am half-way to my initial goal of 100 lbs.  But it’s not the LapBand alone that’s changed my life.  It controls how much I can eat and that’s helpful.  (It takes me about 30 minutes to eat a sandwich!)  But, I also go to the fitness center three days a week and walk for one-half to three-quarters of a mile on the treadmill, do some circuit machine workouts, and ride a reclining bike for a mile or two.  That is short of my ultimate goal but it’s steps in the right direction.

Here’s how this applies to dialysis.  Because I’ve lost this weight, my access is easier to stick.  I don’t have that centimeter of fat over the top of my fistual and, as I reduce my weight, that will only get better.  The best part is: You know those people who come into dialysis skipping and hopping?  Then they go out the same way? Well, I’m becoming one of them.  I didn’t expect that but it’s happening gradually. I have considerably more energy when I get through with dialysis. I rest for a bit when I get home but it’s almost more out of habit than need.  I recover more quickly now and that’s a blessing.  Probably because I’m not carrying an extra 50 pounds!

It’s all a real challenge and I’ll write about “Dialysis and LapBand” next so perhaps you can be helped by my experience with that!

DevonTexas 2015

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About DevonTexas

I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I can be hooked up to a machine that will clean my blood as the kidneys should. Three days a week, I go to a center and have too very large needles stuck in my arm to remove and replace my blood as it passes through a process where it's cleaned and the fluid is removed, a process taking a little over four hours each time. I want to advance knowledge about dialysis so that other patients can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them. All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment. Enjoy.
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4 Responses to Dialysis and Rebirth

  1. Angela says:

    Congratulations!

  2. My experience was different. I started 4 1/2 years ago at 265 pounds, and now weigh in at 180. I ate like a pig and had a good appetite. But no alarm bells rang. About three weeks ago I had a severe coughing spell, was rushed to a hospital, and then to a heart center. I had plaque buildup on my arteries — doctors had dismissed the weight loss on dialysis when the plaque was blocking weight buildup. I now continue dialysis but am at home on palliative hospice, waiting to die from inoperative plaque of the heart. I should have questioned my weight loss more aggressively.

    • DevonTexas says:

      I am so very sorry, Bill! Thank you for sharing your experience because it could very well save someone else from the same tragic consequences. Unintended Weight gain or loss needs to be looked into. I’m fortunate I had a cardiologist review before my LapBand and several times before that for other procedures. He also gets monthly reports on my labs for his records. Plaque buildup due to high cholesterol (bad version of it – LDL) is a long-term disease that doesn’t raise it’s head until it’s too late.

      Again, I’m sorry for your predicament and I thank you for reading my blog.

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