ESRD Network 14 Annual Meeting

 

AnnualMeeting_2

Updated 10/7/14: This year’s annual meeting is October 24-25, 2014.  If you can make it, it is one of the most informative gatherings in the area whether you are a patient, caregiver, or provider.  

From the ESRD Network 14 website:

This one and a half day educational seminar is geared towards nephrologists, nurses, patient care technicians, social workers, and dietitians, as well as patients, their family members, and caregivers. The educational collaborative is designed to assist providers and patients in adjusting to the heightened focus on patient- and family-centered care.

Here’s the best part!  Registration for patients and caregivers is free!  You pay your own travel, lodging, and food but the event fee is zero!

 

Here’s a Link to the Network website that details the event and where you can register.

 

 

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Previously from the June 2012 meeting…

This weekend (June 28-29) I attended the ESRD Network of Texas (14)  annual meeting. I’m exhausted today but almost shaking with excitement about the many things I learned and experienced. I added at least a dozen ideas and drafts to the blog just from some of the ideas I got while there. My pad (mentioned in “WiFi and Dialysis”) is full of notes from the meetings that started Thursday night and finally concluded Saturday afternoon. I met so many interesting people and talked until I was hoarse.

The End Stage Renal Disease (ESRD) Network for Texas (www.ESRDNetwork.org) is a massive operation that attempts to coordinate all ESRD issues for the entire state representing almost forty thousand patients. It brings together professionals like doctors, nurses, nutritionists, social workers, technicians, vendors and patients so that we can collaborate and advance the education and care for all involved with ESRD, Chronic Kidney Disease (CKD) and Transplants.

Watch this space for more about what I got out of this event!   I will even be tell you about an experience I had with a dialysis chair representative that wants me to participate in the design of the next generation chair!

About DevonTexas

I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time. In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment. I also blog in LegacyTales in WordPress if you are interested in the ramblings of a Old Man. Give a peek and let me know what you think. https://legacytales.wordpress.com/ Enjoy.
This entry was posted in CKD, dialysis, ESRD and tagged , , , . Bookmark the permalink.

2 Responses to ESRD Network 14 Annual Meeting

  1. Robert Bear says:

    Dear Devon,
    Great blog posts. I am a true believer in ‘the voice of the patient’. Speaking out and sharing thoughts and experiences about the management of a serious chronic disease in our health care system is important. I look forward to following your posts.

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