Dialysis – Great resources for information

Update 9/18/14:  Sorry I haven’t updated this in a while.  However, I wanted you to know about the Dialysis Patient Citizens (DPC) Education Center website.  Lots of great information.  And use the search button on this website.  I’ve probably written about it.  
 
Update 1/3/13:  I found this great resource from ESRD Network 15.  Good for New Patients.  Especially good video about fluid control.  http://www.esrdnet15.org/treatmnt.htm#fluid 
This link will take you to the section on Fluid Contrl but scroll up for more stuff.  Network 15 did a great job with this!  
 
Update 10/16/12: Kidney Diet Blog.  Found this good source for recipes and foods that will help with CKD and ESRD.  http://www.renaldiethq.com/
 
Update 9/13/12:  Kidney Newsletter.  Sign up to get this from the National Kidney Foundation.  http://www.kidney.org/patients/kidneyliving/index.cfm
 
Update 9/9/12: Working on Part Three of the “Dialysis and the Procedure”. Should be done today.  Watch this space. And thank you to all my readers.  I really appreciate the kind notes! 
These are some of the topics I’m working on…
#Dialysis and Blood Saturation measure
#Dialysis and Disaster
#Dialysis and Infection Control
#Dialysis and When Things Go Wrong
#Dialysis and Blogging

I found this site a while back (should have been there ages ago!) and it’s got some great resources for information about a wide range of kidney issues.  The American Association of Kidney Patients (AAKP) has a page of brochures you can read and download.   https://www.aakp.org/education/resourcelibrary.html

While I am working on some more posts, take a look and read up. Make a point of bookmarking this page and the AAKP site.

© 2012 DevonTexas

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About DevonTexas

I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I can be hooked up to a machine that will clean my blood as the kidneys should. Three days a week, I go to a center and have too very large needles stuck in my arm to remove and replace my blood as it passes through a process where it's cleaned and the fluid is removed, a process taking a little over four hours each time. I want to advance knowledge about dialysis so that other patients can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them. All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment. Enjoy.
This entry was posted in cramping, cramps, dialysis, dry weight, ESRD, fluid control, New Patient, patient care and tagged , , , , , , , . Bookmark the permalink.

4 Responses to Dialysis – Great resources for information

  1. Devon I would just like to ask you something about your blog. I’m having such trouble with people commenting, apparantly they need a password to comment, are you having the same problem? This is a new thing on my blog, I have looked everywhere for that setting but cannot find it? It’s really very frustrating.

  2. Thanks for adding my blog to your list – I appreciate your positive feedback! I am working hard on the “pre-dialysis” side of things!

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