Every day we have to deal with the 800 lb Gorilla in the room. We can often walk around it but it’s there, every minute of every day: Kidney Failure and Dialysis. Here’s a really well written article by Courtney Kidd, LMSW and those moments when you question whether you live FOR the disease or if you live WITH the disease.
Click this link to read, “Do You Live With A Chronic Disease? Or Does The Disease Live For You?”
It’s a reminder, however, that we are not alone. There are many people out there who live with a chronic disease and face this question much too often. My best advice is to get to that point where you accept it and learn to live with it. I wrote about “Dialysis and Acceptance” a few months back. You’re not going to change the fact that you are on dialysis however we are very fortunate we have a solution for kidney failure. Dialysis may be a pain but it’s better than the alternative.
© 2014 DevonTexas
I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time.
In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee
I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com
All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment.
I also blog in LegacyTales in WordPress if you are interested in the ramblings of a Old Man. Give a peek and let me know what you think. https://legacytales.wordpress.com/
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