Dialysis and Good News

GoodnewsIt’s almost rare nowadays that we get some good news from Congress but here’s some news that a bill signed by the President grants dialysis facilities and pharmaceutical providers some stability in what they’ll be reimbursed for kidney patients.   Here’s a link to Dialysis Patient Citizens Education Center that reports on the legislation.

Also, here’s the DPC report of the March World Kidney Day Fly-in and a great picture of me entering Senator Cornyn’s DC Office with Ailsa Chang and her microphone catching every second.  Thank you so very much to NPR for covering this event (the whole Fly-in, not just me! LOL) and helping us get the word out about dialysis patients getting access to their members of Congress.  Every fly-in is another chip at the iceberg and gets us closer to some results for all the time spent.   You’ll have to scroll down for the picture of me and Tonya Jenkins entering Senator Cornyn’s office.   For the DPC report CLICK HERE.

Now, I also want you to see the report about Jack Reynolds from Iowa and his receiving the first Nancy L. Scott Award for Patient Education and Public Service from the DPC Education Center.   Jack is a wonderfully warm and gracious person who has spent the last 40 years in service to the dialysis community.  He is so valued by all concerned that BOTH senators from Iowa (Tom Harkin and Chuck Grassley) contributed to this YouTube report!  He’s an amazing person and we owe so much to him.   Here’s a link to the YouTube of his story.

Thank you to Dialysis Patient Citizens for organizing the Fly-in event!

About DevonTexas

I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time. In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment. I also blog in LegacyTales in WordPress if you are interested in the ramblings of a Old Man. Give a peek and let me know what you think. https://legacytales.wordpress.com/ Enjoy.
This entry was posted in Access, activism, Dialysis Patient Citizens, DPC, ESRD, friendship, kidney, lobbying, Medicare, World Kidney Day and tagged , , , , , , , , , , . Bookmark the permalink.

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