You’re not going to believe this but CMS/Medicare withdrew their proposed changes to Medicare Part D drug coverage for post-transplant patients. Is that amazing or what?! I don’t know if it was the actual intervention by the dialysis/transplant community or the threat of CMS going through what they went through earlier this year with the Proposed Cuts to Dialysis Providers. Anyway, this battle appears to be done. Now the questions is: What’s next? We’ll see.
In the meantime, groups like the National Kidney Foundation, the American Association of Kidney Patients and Dialysis Patient Citizens will be vigilant. Thanks to all of you that responded to the call-to-action.
I’m leaving shortly to board a plane to DC to lobby Congress with Dialysis Patient Citizens. This is one less issue we have to deal with and there are plenty to fill in the void.
I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time.
In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee
I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com
All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment.
I also blog in LegacyTales in WordPress if you are interested in the ramblings of a Old Man. Give a peek and let me know what you think. https://legacytales.wordpress.com/
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, Dialysis Patient Citizens
, National Kidney Foundation. NKF
, social networking
, World Kidney Day
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, Dialysis Patient Citizens
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Great! Thank you for all you do,,,,,,,,,,,,,,,,,,,,/////////////////////////////////////////marie