In celebration of World Kidney Day (13 March 2014) the American Association of Kidney Patients (AAKP) is hosting a webinar about transplantation. You can read about it and register by CLICKING HERE. Also, if you’re not already a member, join AAKP. It’s FREE for dialysis patients and caregivers. The information and education they offer is invaluable!
I would like to be a part of the webinar but I’ll be in Washington DC that day, celebrating WKD with the Dialysis Patient Citizens (DPC) and lobbying Congress on behalf of dialysis patients. I posted about this a few weeks back. You can read about it HERE. I’ll post about this visit when we’re done and I’ll be tweeting about it during the event.
Check out my Twitter at @DevonTexas to get connected so you can enjoy the event along with us. Follow me on Twitter to keep up on all the news. Like last year, I will send tweets at each office and during the other parts of the whirlwind visit. At the end of it, I’ll be exhausted but proud of what we accomplished. You can also check into the twitters by others in DC aw #kidneyaware
I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time.
In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee
I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com
All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment.
I also blog in LegacyTales in WordPress if you are interested in the ramblings of a Old Man. Give a peek and let me know what you think. https://legacytales.wordpress.com/
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Have a great journey and I’m sure the exhaustion will be of the ‘good’ variety!
You’re absolutely correct! So much work but so much accomplishment.