In an article titled “Access to Immunosuppressive Drugs under Medicare Part D is at Risk“, the National Kidney Foundation writes about another issue to which we all need to respond. Last time at was CMS proposed 12 percent cuts to Dialysis Providers. We responded to that and, at least, got Medicare to kick that can down the road a bit.
Now, almost out of the blue and without much warning, CMS is proposing some cost-saving methods that endanger post-transplant patients. The NKF article is a bit vague but I’m sure they are running to catch up on this issue. Dialysis Patient Citizens is also gearing up to respond to this issue. I’ll post a link when they publish some material. You can read the NKF article here and I will write more about it as I learn more.
I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time.
In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee
I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com
All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment.
I also blog in LegacyTales in WordPress if you are interested in the ramblings of a Old Man. Give a peek and let me know what you think. https://legacytales.wordpress.com/
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