It’s that time again… well, it ALMOST that time again. World Kidney Day is March 13, 2014 and many kidney organizations are gearing up for it. Dialysis Patient Citizens (DPC) is getting ready with their annual Fly-in when they bring 50-60 kidney patients from all over the US to Washington, DC to lobby Congress on behalf of kidney patients concerns.
I encourage you to think of something, anything, you can do to raise kidney awareness on World Kidney Day. Many dialysis units will be having fund raising events of one form or another. For example, my unit is participating in a local Kidney Walk to raise money for the National Kidney Foundation. There are lots of events nationwide. You can support them by giving or participating or both. If you think of something, put it in the comments, please. Others can take from your ideas.
2/2/14: Here’s some ideas from the National Kidney Foundation…
World Kidney Day
Here are some ways you can participate on March 13 and during the month of March.
- Wear orange on World Kidney Day, March 13, and share photos on social media #WKD2014
- Participate in a Kidney Walk www.kidneywalk.org
- Share kidney risk factors with 10 friends or loved ones
- Get a quick kidney risk check
- Volunteer to educate a local group with NKF’s “Your Kidneys and You” presentation, contact NKF
I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time.
In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee
I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com
All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment.
I also blog in LegacyTales in WordPress if you are interested in the ramblings of a Old Man. Give a peek and let me know what you think. https://legacytales.wordpress.com/
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Thanks for the ‘advance warning!’ In February I plan to attend a one day conference, ably sponsored by NKF. I live 2 hours away from the conference but find the comraderie and general kidney centered info to be valuable. I am a PD patient and can usually find helpful info at these conferences. Maybe someday we’ll even have a support group in my town.