Above is a “search term” which showed up on my blog account. In other words, that is what someone entered into a search engine like “Google” to get to my blog.
In the comments on a previous post, “Dialysis and Death (Part 3)”, a reader makes the point that death is inevitable. Another comment raises the issue of the “process of dying”. So, obviously this is an important issue with dialysis patients and their sphere of friends and relatives. In this case, it’s a friend of a dialysis patient asking, “How do I talk to him?”
I’m certainly no expert on death and dying and how to deal with it as either a patient or the friend of one. What I offer is my gut-level feelings and my own personal views on it. I’ve dealt with the issue several times (perhaps many) in my life. When I was in my 20’s I had a couple friends who passed then, later in life, I had more friends who passed. It’s a fact of life that as you get older, you deal with death more and more. The most significant experience was with my friend Jayne about a dozen years ago. I agreed to take care of her so she could die in her home (which she did). Then in this last year or so, I lost two more good friends.
Keep in mind that dialysis is life-giving. Just because someone is in kidney failure and is on dialysis doesn’t mean they are “dying”. It’s a fact that dialysis patient don’t live as long as non-dialysis patients but, my point is, just because one is on dialysis doesn’t mean death is just steps away. However, more than most people, dialysis patients must face this issue head-on. Likewise, their friends and family must also face this issue. I’m pleased he/she wants to discuss the issue openly.
To specifically answer the question that began this post… I’m not sure anyone can answer that. He is your friend and you are much more familiar with the circumstances such as his age and his reasons for dialysis. It’s a difficult subject to broach with some. You know he’s dying, He knows he’s dying. So why not just launch in. Find a private location and moment. Take a deep breath. And go fo it. When you’re done you may have the feeling I did with my friend Jayne. I felt like I had said all that I needed to say and I believe Jayne did too. She knew I loved (and still do) her and I know she loved me. We didn’t like having to part ways but the paths we are walking only diverged for a while. Eventually we will come back to the same path and we’ll walk together again.
To enter into the discussion, just ask him how he’s feeling. If he says, “fine” or goes into medical conditions, stop him and explain that you are more interested in how he’s feeling about the possibility of death. How does he feel about dying? If you can find a better way, use it. As much as possible, let him talk. You can open the discussion but he’s the one that needs to talk about it. Don’t shut him down. Don’t tell him, “It’s going to be okay” because you know it’s not. Even if one of you begins to cry, don’t change the subject to “make things better”. I cried and Jayne cried. We were talking about death. Crying is okay. I reached deep inside myself and made sure I said all that I needed to say. I didn’t want to end this talk with anything unsaid. That was our last time to speak.
Age is not a factor in death as kidney disease effects all of us on dialysis. We want to believe that the young will live longer than us but unfortunately death doesn’t discriminate by age. It seems so much worse when it’s a young person who dies so dealing with the death of someone young is much more difficult than an older person. This fact makes it more difficult to speak about death with a young person.
Talking about death with someone is not really different than speaking to anyone you love. Always speak from your heart to loved ones. Don’t let things go unsaid. I came across this web page from the Cancer Research UK titled, “Difficult questions when you are dying“. It may help to get you started. I encourage you to follow your instinct in this case. If you have the patient’s best interests at heart, you will do the right thing.
Just to rehash… my previous posts about Dialysis and Death are:Dialysis and Death – where I wrote about the death of my dialysis friend, John Dialysis and Death (Part 2) – where I wrote about how HIPAA often interferes with notifying other patients about a dialysis patient’s passing. Dialysis and Death (Part 3) – where I link to an article by Dr. Robert Allan Bear who wrote about “palliative care” (healthcare that focuses on relieving and preventing the suffering of patients)
So, you can see, death is an aspect of dialysis. As much as it gives us life, those of us on dialysis must also deal with the ever-present possibilities of death. It’s a serious issue and one with which patients, family and friends must cope