Update 11/7/13: Here’s a post from Dialysis Patient Citizens website about setting up for Home Hemo. Very good ideas! To read it, CLICK HERE
If you’re thinking about doing home hemodialysis, this is an excellent source for information. Mike uses a permacath for his access. I’ll write more about this topic later but I was so impressed with how Mike presents his experience with great writing and wonderful photos. Take a look at his blog... CLICK HERE
I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time.
In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee
I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com
All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment.
I also blog in LegacyTales in WordPress if you are interested in the ramblings of a Old Man. Give a peek and let me know what you think. https://legacytales.wordpress.com/
This entry was posted in Access
, dialysis equipment
, Home dialysis
and tagged blogging
. Bookmark the permalink
Thanks. I would never have found his blog without you listing it. I would be too scared to do that and I feel safer at the clinic. I like learning about the options……………Marie
Thanks for posting Mike’s blog. We are getting lots of pressure to switch to home hemo, which is confusing since they are opening so many new centers. I had decided against it because we have a dog and no room for a sterile site. But Mike details the pitfalls of home treatment beautifully. Thanks but I will stick with my 5:45 A.M, runs at the center, Bill Stewart, Vancouver, Washington
You bot have good, valid points about each. I personally prefer in-center because of the sterile conditions, someone else sticks (I’m chicken!) and I like the social atmosphere with friends and acquaintances.
Thank you for the kind words. I am just writing from my heart and soul and it has really helped me writing the blog to get things out which has been a problem for me in years past. In 2003 i was stuck by a needle at work and developed HIV unfortunately. For years i dealt with depression and held a lot of stuff in because i was brought up in the 60’s and 70’s where men just sucked it up and it was considered to be weak to express your feelings. When i was in the hospital for all of this past May i made a decision after finding out i was ESRD to change my way of thinking about how i would handle this disease. I wanted to be a better husband and father for my wife and two daughters. Also a better friend for all my lifelong friends. So i thought a few months ago to start the blog and away i went.
Excellent! Glad you made that decision!
I just wanted to make a comment with regards to Mr. Stewarts comment about the pitfalls of home hemo. I hope i do not come across as totally negative about home hemo because the positives far out weigh the negatives for me anyway. For starters your body prefers long and slower blood flow dialysis and it is much more effective at removing toxins and extra water. Especially for bigger men like myself (6 foot 4 265 pounds) and since my kidneys are in very bad shape i want to do everything possible to help them as much as i can until i have a transplant. I talked to a few other guys at the home hemo unit and they told me it is like night and day in how you feel going from 3 four hour runs a week at the renal unit to 5 eight hour runs a week. Plus i feel very empowered being in control of my own health which is a good feeling. Now there are negatives as well but ESRD is a very complex and time consuming disease so there is no perfect solution for any individual. Every person is different and that is perfectly alright in my opinion. I often tell people that dealing with the HIV virus the last ten years has been very difficult but it is a piece of cake compared with ESRD mostly because of how it effects your way of life.
Take care and good luck.Mike.http://mike2kal.wordpress.com/
Thanks for that point of view! There are very few patients that can offer it.
I may be a bad patient, but I’ve been doing home hemo for over four years without having a sterile room. I generally use my fistula for access, but due to a surgery problem in July I’ve been using a Permcath for a few months. I currently have THREE medium-sized dogs, that sleep in the same room I sleep in while dialyzing. They aren’t allowed in my lap or on the furniture. I do eight hour treatments five times a week. I’ve never had any sort of access-related infection. Aseptic technique doesn’t have to extend to your whole house. You just have to pay attention to the area that is directly affecting your treatment. (the chair, your hands, the needles, etc.)