Dialysis and DC

Ansrew and me at US Capitol 1

Update 9/9/13: In DC and having a wonderful meeting with many Patient Ambassadors from Dialysis Patient Citizens. On Twitter, see #stopESRDcuts as that is why we are here. Join DPC free. Its a patient advocacy group based in DC.


Update 9/7/13: I’m om my way to Washington, D.C. again for the Dialysis Patient Citizens (DPC).  I traveled there previously and wrote about my experience in “Dialysis and Our Voice in Congress”.  It was an awesome trip and we accomplished a lot in a very short period of time.

As you probably know, it’s a bit complicated to make all the necessary preparations to travel when you’re on dialysis.  But DPC makes this so very easy and relatively painless.   I filled out a form about my dialysis center and they make all the arrangements, coordinating with the center in DC and mine.  I’ve read and heard about some very bad experiences when patients travel and someone doesn’t do all the things that need to be done.  But, as I said, DPC is very good at this.  I really appreciate their diligence.

So, on September 7, 2013, I will travel to D.C. to meet with the Texas delegation (the Representative (Kenny Marchant)  for my area and the two Senators that represent Texas; Ted Cruz and John Cornyn.   The topic for our visit will be the Proposed CMS cuts.  I wrote about them previously in “Dialysis and Medicare/CMS Cuts” and a couple times before that.

I know these cuts may seem harmless.  After all, what’s a 10 percent cut?  It’s not that big!  But it has the potential  of touching on all aspects of our care.  The cost could mean about $60,ooo for a center for one year.  That’s the cost of a couple techs or an RN.  For the non-profit dialysis centers, this could be a real hit to the bottom-line.  For the for-profit centers, it could be a reason to cut some services, like nocturnal dialysis.

FYI, nocturnal dialysis is a loss-leader.  It requires staffing a center for eight hours from late evening to early morning versus the two or three four-hour shifts that most centers offer.   Nocturnal dialysis is a great benefit for people who work full-time because they can dialyze  at night and get up in time to go to work.  Consider this:  If your center has a shift that is not completely full, they may have to cut out that shift because of these cuts.  Not good, eh?

These cuts can effect large centers and the very small.  A small center serving a rural population (such as we have here in Texas) is especially vulnerable.  If these cuts cause them to close, those patients will have to travel to the next center and that may mean several hours of driving (Texas is quite large!).  But even if it’s a small state, having the center drop shifts of close centers can be a huge inconvenience to dialysis patients.

I’ll be going to Washington (again) to speak on behalf of dialysis patients and I want to thank DPC for this opportunity to do so.  If you are not currently a member of Dialysis Patient Citizens, join.  It’s Free! And your membership increases the effectiveness DPC has in Congress.  You can contact DPC at:

Dialysis Patients Center
122 C Street N.W., Suite 510
Washington, DC 20001
Toll free: 1-866-877-4242
Fax: 202-789-6935
Email: dpc@dialysispatients.org

Or go to their website… www.DialysisPatients.org 

DPC is also on Facebook 

About DevonTexas

I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time. In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment. I also blog in LegacyTales in WordPress if you are interested in the ramblings of a Old Man. Give a peek and let me know what you think. https://legacytales.wordpress.com/ Enjoy.
This entry was posted in activism, CMS, Dialysis Patient Citizens, DPC, lobbying, Medicare, politics and tagged , , , , , , , . Bookmark the permalink.

2 Responses to Dialysis and DC

  1. sillwilliam@comcast.net says:

    Thank you so much for all that you are doing on behalf of dialysis patients. Ellen Cassidy

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