In that time, I’ve been to “The Center from Hell” and where I am now (Center from Heaven?). I’ve learned a lot and suffered much. I have seriously considered ending dialysis and found genuine human compassion and caring. I realized how traumatic that decision would have been on more than just my family at home but my family at the dialysis center. I wrote about that in “Dialysis and Depression“.
I’ve found the support I needed and am returning that support by participating in The ESRDNetwork.org of Texas and the Dialysis Patient Citizens (DPC) and the CDC Infections Control Forum. I’ve found being active and having a life outside dialysis is necessary. I am person on dialysis, not a dialysis patient.
I was working full-time until I was “laid off” and of which I wrote in “Dialysis and Your Job“. I tried to relate the struggle that I’ve been through in the hope that my fellow ESRD’ers will benefit from that experience and not have to go through what I did. My best advice is if you can go out on disability insurance, do it while you can because you may not be given the chance if you leave it to the corporate bottom-liners. I am chronicling my struggle to get the EEOC to mediate a settlement with my former employer under the ADA and ADEA protections so I can have something to fall back on as I live on the pittance from Social Security Disability and Food Stamps.
So this “celebration” of an Anniversary is bittersweet. It’s both good and bad but I’ve learned to take life as it comes and just deal with what is before me. I don’t look to the past for much more than the lessons I learned and to the future with the optimism that things will work out and that always seems to be the case. I don’t fear the future, I just take it as it comes.
Happy Anniversary to me and blessings on those who share my fate and read my blog.
© 2013 DevonTexas