Dialysis and Multi-List Transplant

I came across this article and podcast from the Renal Support Network’sKidney Talk” program and figured I’d pass it along.

Kidneyy TalkI am often asked about transplants and new patients especially ask me.  Their nephrologist may have suggested they get on the transplant list even before they mention dialysis.  That’s informative, yes, but it’s also a bit cruel.  The fact is many patients are on a list for several before they get to the top and are eligible for a kidney.  In the meantime they are on dialysis.  It’s a complicated issue.  However, this podcast offers a novel approach to getting on several lists so that you increase your chances as some areas have shorter lists.

An acquaintance of mine recently got a transplant and his suggestion was to be the “squeaky wheel” (in a good way) by sending letters and documenting your way through the process.  Don’t just phone to ask questions, but write so that the facility feels a responsibility to answer you.  He also created a resume, of sorts, documenting why he should get a kidney. It seems to have helped.  He has a new kidney and reports that he’s “peeing like a racehorse!”

What’s particularly interesting in the podcast are some of the  suggestions to save money in pursuit of a transplant in areas where you don’t live and must travel to be evaluated.  You can get discounts and in, some cases, financial assistance.

Getting a transplants isn’t easy.  Here’s an idea to make it quicker.

Give a listen to Kidney Talk by Clicking Here.

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About DevonTexas

I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I can be hooked up to a machine that will clean my blood as the kidneys should. Three days a week, I go to a center and have too very large needles stuck in my arm to remove and replace my blood as it passes through a process where it's cleaned and the fluid is removed, a process taking a little over four hours each time. I want to advance knowledge about dialysis so that other patients can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them. All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment. Enjoy.
This entry was posted in dialysis, ESRD, New Patient, Transplant. Bookmark the permalink.

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