The Dialysis Patient Citizens opened a new Education Center. Here’s the link to the page for it. I look forward to reading and contributing to it.
In case you’re not aware of Dialysis Patient Citizens, they are the leading advocacy organization for dialysis patients. All the members of the Board of Directors must be active dialysis patients. The previous President received a transplant so she had to step down. But that didn’t stop her. She’s leading the new Education Center. Nancy Scott is really dedicated to kidney patients. I’m so glad to have worked with her as a Patient Ambassador while she was in office. I wish her all the best as she continues to lead the kidney community in this new effort.
© 2013 DevonTexas
I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time.
In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee
I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com
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