Happy, Happy Christmas!
I got a couple wonderful presents this week that gave me such joy on this Christmas morning! They awakened that childhood memory of opening gifts of on Christmas morning.
One was from Rick who wrote:
“I start next month and am trying to come to terms with it I HATE NEEDLES so I had the catheter installed also Im 60 years old and diabetic this is a wonderful site for me its all about staying alive and feeling well! will let you know in a couple of months on the info is true and what is not!”
Another was from a family in England who wrote:
“Hi there. Great to find such a comprehensive blog about dialysis. My 8 year old son has been on dialysis since May 2012, first on PD at home now hemo via a permcath at hospital. We’ve had our fair share of challenges along the way! Will follow you with interest. All the very best to you. (ps you can view our blog at oknak.wordpress.com if interested)”
I know these may not seem like conventional “gifts” but to me they are. They took the time to read and comment on my blog to let me know how much they appreciate the posts. Also, more importantly, they shared that my efforts in this blog were helpful to them. That’s the most wonderful gift I could ask for!
When I started this blog, I did so to help others become informed about dialysis and CKD. I went for severals year with very little information and support and I made a determined effort to see that others don’t have to go through what I did. In my small way I wanted to help others and these gifts/comments are proof that my work is beneficial.
So, on this Christmas morning, I say “Thank You!” to all my readers and, especially those who write to me to let me know I helped.
I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time.
In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee
I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com
All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment.
I also blog in LegacyTales in WordPress if you are interested in the ramblings of a Old Man. Give a peek and let me know what you think. https://legacytales.wordpress.com/
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How very nice, Devon. I kind of got the same presents through your blog and was happy about them myself. It is great to get such responses to your wonderful and helpful blog. Being on dialysis myself, as you know, being of help to someone is major to me, too. Merry Christmas, my friend. Enjoy this most wonderful day of joy.
Thank you Harriet! Happy New Year and all the best to you for 2013.
Happy New Year, Devon. My night will end at 9:00pm and the festivities will be viewed on TV in the morning. Can’t stay awake till the horns and champagne anymore.
Had dialysis this morning, Sunday and will gratefully be back on schedule the rest of the week. It has been very confusing keeping two weeks of holiday schedules straight in my mind.
I am hoping my back will allow me to go to Washington for the World Kidney Day Fly-In in March. I look so forward to that. Feel honored to be invited again.
And a Wonderful New Year to YOU! I hope you can make it. I was also asked. Perhaps they are trying to recreate the gang than was there in Sept 2011. It will be wonderful to see you again and to make our voice heard in Congress. Likewise, it’s a honor to be invited. I hope we’re both in good shape for the trip.
That is great, Devon. I really hope so, too. I have accepted if my RSVP got there the other day. It will be wonderful to see you again and anyone who was there in 2011, as well as any who are new or unknown to me. Now, I’m looking even more forward to going.
I also take this time to thank . the most important is that I lost the fear of the unknown .i bel
Devon, I think that it’s wonderful how you stand up for the rights of patients on dialysis. I have learned a lot just reading your notes in the davita forum. Glad to see you have a blog.
Thank you and I’m glad you found it. Thanks for reading it.
Hi Devon,you are a great inspiration…I wish my dad would go on dialysis,but..he is refusing,he just got out of Hospital yesterday after having a heart attack,his kidneys are only 16 percent.i am so worried,I wish he would give it a chance.
After all he’s been through, he probably asking himself if it’s worth it. I went through the same and I have friends who have had to answer that too. It might help if you offer him some reasons to stick around and also help him resolve his possible fears and concerns about enduring the treatment.