I’m in a conference this weekend so I won’t have time to post much. In the meantime, check out some of my blogs from past weeks.
I’m especially focusing on Fluid Control again. I can’t tell you how important this is for dialysis patients. Just last week I was in the waiting room before dialysis and the woman next to me was talking about how it was difficult for her to breath before dialysis because she is so full of fluid. The next thing she said made it clear why. “I usually take off six kilos”, she said. She hardly weighed six kilos herself! Well, my Dialysis Preacher came out and I tried gently to explain the importance of controlling fluids. Later, she was sitting next to me in the center when she “soured” and they had to call in the EMT’s to take her to the hospital. I felt so bad for her but I knew it was mostly preventable. See my postings “Dialysis and Fluid Control” and “Dialysis and Cramping” and I mention it in, “Dialysis and AMA“
I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I could be hooked up to a machine that would clean my blood as the kidneys should. Three days a week, I went to a dialysis center and had too very large needles stuck in my arm to remove and replace my blood as it passed through a process where it was cleaned and the fluid was removed, a process taking a little over four hours each time.
In November 2017, I received a kidney transplant from a deceased donor. My life went into overdrive. With a "new" functioning kidney, I no longer had to go to a dialysis center and my days were not open to be lived rather than recovering from dialysis which meant dialyzing for three days and resting for 4 days a week. I work full-time and often 50 hours per week. It is something I never imagined. I highly recommend it! HeeHee
I want to advance knowledge about dialysis and transplant so that others can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them in www.DevonTexas.com
All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment.
I also blog in LegacyTales in WordPress if you are interested in the ramblings of a Old Man. Give a peek and let me know what you think. https://legacytales.wordpress.com/
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It is very difficult to control fluid intake, I will agree, but it is so important because every kilo of fluid taken off during dialysis is hard on your heart especially and the rest of your body in general. I am only allowed to take off 4 kilos each treatment because of my heart. There are people in my center who come in on Monday feeling so bad and so bloated they can hardly move. And these people won’t listen. They say they are going to drink as much as they want because it is too hard to restrict because they get so thirsty. I’ve seen the same thing you have, Devon and it breaks my heart.
Enjoy your conference. Hope you will report on it when you get back.
Thank you for that input. Fluid control is one of those never-ending demons we all have to wrestle every day.