The National Kidney Fund (NKF) has several programs for kidney and dialysis patients. I thought you should know about these.
The NKF has a Peer Support system that allows patients to be mentored by other patients who have completed a lengthy training program. “This new program matches patients in need of support with peer mentors who are positive role models.” You connect with a mentor via phone and are able to ask questions of someone who’s been there, done that.
They have an Ask the Doctor program that allows you to pose those pesky questions to someone more reliable than a discussion forum. Frankly, most of the answers are good but consider the source. Asking a doctor is much better and more accurate.
They also have a “Kidney Kitchen” where you can find kidney-friendly recipes. This is really important because, if you’re in CKD, you can avoid potassium and phosphorus and increase your protein with your diet and fend off further kidney deterioration. If you’re in dialysis, eating foods low in potassium and phosphorus will help make kidney failure less bothersome and fend of long-term damage of high levels of both.
NKF has a webpage dedicated to Dialysis where you can read up on almost every aspect of the procedure including making the decision to stop. I especially appreciate that they cover this very difficult issue and in a non-judgmental, compassionate manner. But, there are many other dialysis related issues covered including “Dialysis Myths”. I liked this posting very much. Great points!
Likewise, they have a specific section about CKD (Chronic Kidney Disease) where you can “Learn more about kidney disease, including risk factors, symptoms, and important prevention tips.” Some very good material in there for people with kidney disease but not on dialysis. I liked the “Three Simple Tests to Check for Kidney Disease” that discusses each and what they mean especially Glomerular filtration rate (GFR).
NKF also has a magazine called Kidney Living you can sign up for here. I recommend this as it covers all aspects of CKD and Dialysis.
I appreciate all the wonderful support that the NKF offers to CKD and Dialysis patients and the NKF Cares part of their website is especially good. Their home website has many links to other resources for kidney-related issues.
© 2012 DevonTexas