I’m working! I’m working!

Updated 8/31/12: Still working on my next posting.  Sorry for the hold up.  That Wednesday session took the wind out of my sails!  Also, I spent my last bit of energy on the Hurricane Issac posting.  It was important to get the message about Disaster Prep out to the world,  I should have a new post on Saturday morning.  

Also, If you’re not already a member and you are a dialysis patient or caregiver, go to www.DialysisPatients.org and sign up!  This is an important patient advocate group that supports us and needs our support in return.  It’s FREE! 

I really am working on some blog postings but yesterday was a real bitch,  It was about 3:30pm and I’d had a good session until the tech took me off.  My Blood Pressure was adequate, about 95/55 which is low but not too low for me.  I had some minor cramping and figured we’d gone as close as possible to the dry weight.  After she removed the needles, I started getting REALLY light-headed and the room started getting dark. My BP went lower!  And lower!  She got a me a cup of chicken broth (sodium and fluid) but before I could get much of that down, my BP went lower.  The tech finally gave up and re-stuck me so she could give me IV saline and the RN brought in the oxygen generator.  I must have looked a mess because they kept looking at me like I was disappearing! At one point my BP was 87/35.  Even I was getting worried.  I kept glancing around the room to see if Jesus was coming to greet me.

It took over an hour before my BP started to rise.  They gave me 750 cc of saline over than time and, finally, about 5pm, I was able to stand up and walk to the scales for my weigh-out.  My BP was 99/65 so they felt comfortable letting me go.  I have no explanation for why all that happened.  We didn’t take off  any more than usual.  I was fine before she took the needles out.  The doc came out from his office and we discussed it.  We’ll raise my dry weight a kilo and go with that for a while to see if it helps.  We should know better after a couple sessions.  Strange.  I don’t like it when unusual things happen but it makes for some variety, I guess.  And variety is the spice of like, right?

Anyway, I’m not my usual bubbly self today, a bit exhausted, so forgive me.  I’ll work a little slower today and continue work on the continuing series of  “Dialysis and the Procedure“.  I may have it done by late today or tomorrow.

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About DevonTexas

I am a person with ESRD (End Stage Renal Disease) which means my kidneys don't work. Forty or so years ago that would have been a death sentence but today there is Dialysis which means I can be hooked up to a machine that will clean my blood as the kidneys should. Three days a week, I go to a center and have too very large needles stuck in my arm to remove and replace my blood as it passes through a process where it's cleaned and the fluid is removed, a process taking a little over four hours each time. I want to advance knowledge about dialysis so that other patients can learn from my experience and mistakes. We shouldn't have to reinvent the wheel, eh? There is so much to be learned and experienced about our predicament. There are vast resources available to support us and enrich our lives but many patients don't know about them. There are also many issues that we have to deal with whether we want to or not. So I blog about them. All comments are confidential until I approve them. If you don't want your comment public, let me know and I will respect that. So, feel free to leave a comment. Enjoy.
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