Dialysis and Apology

Hey all!

I am really, really am sorry for not being more productive and writing more posts on my blog.  August is coming so I will make an effort to change my patterns and write more.

Be assured that I really appreciate your support by reading the posts and making comments.  It inspires and encourages me.  So, please continue to come here and I will continue to write posts.


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Dialysis CKD Kidney Disease and Hidden Grapefruit Sources

grapefruitThe KidneyBuzz (www.kidneybuzz.com) website posted a great piece on the issue of hidden sources of Grapefruit.  Grapefruit, as you might or might not know, can be detrimental for dialysis patients.

Here’s the article for your reading pleasure.  However, in each case we should refer to our dietitian to assure we’re doing this right.


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Dialysis and Infection Control

Controlling infection is one thing we patients can control… well, as much as possible anyway.  It means washing your hands and your fistula or graft site with anti-bacterial soap and warm water.  It means keeping your access covered when you are out and about (see also “Dialysis Armbands and Clothing“)

However, I came across this report and it really frightens me.  The American Journal of Infection Control reports of how the wipes at some dialysis centers may contain infectious organisms the may spread infection more than they clean.  They said…

…found that Wet Detergent or Disinfectant Wipes were inconsistent and, “In ‘every instance’ the wipes actually spread common and potentially deadly infections from one surface to another,”…

My advice is that you observe what cleaning methods your center uses and bring this report to their attention.  I’m sure they want to control infections as much as we do.  This report seems to focus the blame on disinfectant wipes:

In more detail, Lead Researcher Professor Jean-Yves Maillard disclosed that the Detergent/Disinfectant Wipes initially succeeded in their goal of removing superbugs. When used on multiple surfaces, however, the Detergent Cloth then transferred “significant amounts of bacteria” between surfaces.

Here’s a report from KidneyBuzz titled, “Disinfection Wipes At Dialysis & Hospitals Found To Harm CKD Patients Through Bacteria Infections” and it also contains some links to related issues of infection control.  Well worth reading!

Posted in A/V Fistula, A/V Graft, ESRD, Patient Responsibilities | Tagged , , , , , , | Leave a comment

Dialysis and kidney Diet Updated 6/2015


6-20-15: Revised to delete the link to a site no longer available. Don’t worry.  I’ll find more!  LOL

Okay, I’ve written about “Dialysis and Phosphorus” and, eventually, “Dialysis and Potassium”  (Sorry, I haven’t written it yet.  I didn’t realize that until just now! Oops)

From RenalDietHQ comes an article that just about covers every base from CKD diet plans to ESRD diet plans.  It’s a payment-based diet system, but for some people, that may be a good way to manage their diet.  CLICK HERE to read it.  But, for free, there is the Davita Diet Helper; you’ll have to put some effort into managing your own diet, however.

Let them eat during dialysis!  Here’s a study published in the Journal of Renal Nurtition that looks at the benefits of eating or feeding patients during dialysis.  It’s very technical because it’s an academic study but it shows that feeding dialysis patients improves their lot.  Let Them Eat During Dialysis: An Overlooked Opportunity to Improve Outcomes in Maintenance Hemodialysis Patients

And, some tips from the ESRD Network 8 (AL, MS, TN) about a dialysis diet and the notorious “FAST FOOD”!

SuperfoodsHere’s a post from the National Kidney Foundation titled, “7 Kidney-friendly Superfoods”  Here are some foods you CAN eat!  Yay!

Here’s a sign-up page for the Davita Diet Helper.  Davita has a committed group of dietitians  that come up with great kidney-friendly ideas all the time


That’s it for the moment but I’m sure I’ll come across much more to add to this.  In the meantime, if you have a good recipe or place where you find inspiration for cooking for dialysis, please feel free to comment below.  It will really help others.


© 2014 DevonTexas

Posted in apps, computing, cooking. cookbook, dialysis, diet, ESRD, exercise, fluid control, phosphorus, potassium, recipes | 3 Comments

Dialysis and Bone Disease

bonesFrom the DPC Education Center comes a conference call on Bone and Mineral Disease.

Why is this important or relevant to dialysis patients?  Well, that pesky phosphorus (See Dialysis and Phosphorus Control) leaches calcium from your bones and replaces it with phosphorus.  Your bones go from being white with calcium to black with phosphorus!  Then, the bones become brittle and break easily.  I have several friends who have experienced severe broken bones and some are now wheelchair-bound because of this.  This is a very serious issue and it’s why the doctors and staff are so concerned with you phosphorus, calcium and parathyroid levels.

If you are available to dial-in to the conference June 16th, do so.  Otherwise, the session will be recorded and available later on the DPC Education Center website.

To participate in the cal on June 16th, see the link below:

Bone and Mineral Disease Patient Education Call on June 16

The DPC Education Center will hold an educational call on bone and mineral disease metabolism (BMM) disease on Tuesday, June 16 at 3pm Eastern Standard Time (EST). Chronic kidney disease patients sometimes experience BMM problems, and many dialysis patients also have some form of BMM disorder.

Posted in Bicarbonate, bones, calcium, dialysis, Dialysis Center, dietary restictions, ESRD, fluid control, New Patient, patient care, Patient Responsibilities, phosphorus, potassium, Uncategorized | Tagged , , , , , , , , , , , , | Leave a comment

Dialysis and Treatment Options

Recently a fellow patient asked me what treatment options were available to dialysis patients.  I stuttered a bit and named the ones that came to mind: In-center dialysis, Peritoneal Dialysis, Home Hemodialysis, and NxStage.  These may be correct but that’s about as far as I went.  Honestly, I couldn’t give her much more information than that although I should be well versed in various options (also referred to as Modalities).  Then, this recording of a conference call came up about “Treatment Options” from the DPC Education Center.

Education Manager & Nephrology Nurse Joanne Smith Provides Education on Treatment Options for Kidney Patients

On April 9, Education Manager Joanne Smith hosted an educational conference call and webinar on treatment options for kidney patients. Smith has been a nephrology nurse for 32 years, and provides in-home training to patients on peritoneal and hemodialysis.

CLICK HERE to listen  and view the slides on YouTube.

If you have some more time, the DPC Education Center is very valuable.

I also came across this link to training manuals for nephrologists in training.  It might offer some insight into how physicians are trained in nephrology and renal issues. CLICK HERE to see it.

Posted in dialysis, Dialysis Center, Dialysis Patient Citizens, Dialysis Treatment Options, Home dialysis, kidney, Modalities, Modality, patient care, Transplant | Tagged , , , , , , , , , , , , , | 2 Comments

Dialysis and Patient Responsibilies

Texas Map

From the ESRD Network of Texas (14), here is some information about Patient Responsibilities

Each month a new educational topic is available for Texas ESRD patients. May’s topic is “Learn About Patient’s Responsibilities“. These materials can be located on the Network 14 website by CLICKING HERE.  It is also available in Spanish by CLICKING HERE.  Please feel free to print these out and post them in your center or ask the staff member to do that.

As this is a frequently discussed topic by both patients and staff, it’s handy to have some idea of what Patient Responsibilities are in a dialysis center.  Perhaps the greatest responsibility is to Ask Questions!  You may not get the answer the first time, so ask again if you need to.

Your questions are important.  Don’t accept a flippant answer. When I was new, I asked why the machine was alarming.  I was told, “It’s you.”  That answer gave me no information at all!  Don’t accept an answer like that.  Ask again or ask another person.

Also, see my post “Dialysis and Hurricanes” if you like in an area affected by them, especially.  But, there may be something in there that prepares you for an emergency of another sort.  I posted “Dialysis and Disaster Planning 2013-2014” too


Posted in activism, CKD, dialysis, Home dialysis, kidney, New Patient, patient care, Patient Responsibilities, Patient-Centered Care | Tagged , , , , , , , , | Leave a comment